http://ehlers-danlos.com/ A nonprofit organization serving the global community to effect change and progress in the world of Ehlers-Danlos Syndrome.
https://rarediseases.info.nih.gov/diseases/6322/ehlers-danlos-syndrome Disease education, research and information.
http://rarediseases.org/rare-diseases/ehlers-danlos-syndrome/ Patient support, clinician resources, research.
http://www.chronicpainpartners.com/ Webinars, support groups, articles. Helps EDSers find or organize support groups in their local communities.
http://strengthflexibilityhealtheds.com/ A digital wellness magazine. Offers stories of hope, health and medical information, nutrition and mind-body resources.
http://ourstoriesofstrength.com/category/news/ Personal stories of strength.
http://prettyill.com/ The Driscoll Theory. Dr. Driscoll, a doctor (EDS patient) offers help and hope for people with EDS and related conditions.
https://themighty.com/ The Mighty, facing disability, disease and mental illness.
https://www.facebook.com/ehlers.danlos/ The EDS Society.
https://www.facebook.com/groups/edsandaloe/ The Cusack Protocol. Restoring connective tissues through supplementation.
https://www.facebook.com/groups/edslifehacks/ EDS Life Hacks.
Books on Amazon:
Joint Hypermobility Handbook Dr. Brad Tinkle.
A Multiple Discipline Approach To Managing EDS. Isobel Night.
Zebras of Hope: A guide to living with Ehlers-Danlos Syndrome. Ellen C. Kelleher. Personal stories of living with EDS.
Living Life to the Fullest with EDS Kevin Muldowney. A PT’s guide (and protocol) to living better with EDS.
This is a sampling of available resources. Resources (and blogs) may change over time. This list is not meant as an endorsement one way or another.